My mum had a relapse of schizophrenia after being well on Modecate all my life (over 40 years). It’s been horrendous and she’s still in psychiatric hospital now.
I know she’s not the only one going through such an experience and one of my greatest frustrations is that there appears to be no system for the NHS (or other health organisations) to gather information from patients that have been taken off Modecate, but I’m sure this data would be invaluable. I guess not that many people were/are still taking Modecate as it’s an “old” anti-psychotic drug but there must still be a significant and important number of people affected (thousands?)
Therefore, I decided to set up an online forum where people can share experiences of coming off Modecate in the hope that we may see some common trends and, at the very least, support each other a little.
If you or someone you know has experience of Modecate please feel free to join in and participate in the forums here.
Thanks, Mr A